The purpose of this study is to evaluate the challenges, behavioral patterns, and preferences of minority patient participation in clinical trials. But I m not convinced . Mayo Clinic surgeons work to ensure your vulvar cancer treatment preserves the cosmetic appearance and function of your vulva. Accessed Feb. 21, 2016. Keep fighting, dont give up. 4. Keep your head up and your strength. When it's necessary to remove lymph nodes, surgeons remove only as many as they need to ensure all the cancer has been . In most cases, Mayo Clinic doesn't require a physician referral. (For those of you silently wondering, the vulva consists of your outer genitalsthe vaginal lips, vaginal opening, clitoris, and perineum). The vulva, quite often erroneously referred to as vagina or many other names, is the external part of the female genitalia. Even though I'm 79, I'm feeling . Still, you should see your provider as soon as possible if you notice these signs. include protected health information. I had no Surgery just 6 weeks of Chemo 1 day a week & 6 weeks of Radiation 5 days a week. Make a donation. The pain has gone from manageable to constant and severe. Talk about it, reach out, dont be ashame. The vulva is made up of mucous membranes, several glands, and highly innervated and sensitive skin and hair follicles. With VAIN, cells in the vagina appear different from normal cells, but not different enough to be considered cancer. I have no idea what to expect or whether or not I will need additional treatment. Doctors often misdiagnose vulvar cancer as an abscess, but if caught. The presence of urine or fecal incontinence, Systemic or local dermatologic conditions. She died at 62, 10 months after being diagnosed. She opted for no surgery, she was free from this horrible cancer for about 4 months. I was first diagnosed with vulvar cancer at age 48, had a radical vulvectomy( precancer several times beforehand). We then find out the cancer has spread to her liver, they give us 12 months. More discomfort and just knew something was wrong. An open sore or growth visible on the skin. Vulvar disorders are usually reported to or noted by providers from various disciplines (e.g., dermatologists, gynecologists, urologists, primary care physicians, nurse practitioners and physician assistants). Have been diagnosed with what the biopsy says is a squamous cell cancer but both the surgeons Ive seen also believe it involves basal cells. Although 8 in 10 people with invasive vaginal cancer have one or more of these symptoms, these symptoms rarely indicate a condition as serious as vaginal cancer. Getting emotional support. I am grateful for the financial support I have received from family, friends, my professional community, and even strangers, as I am self-employed and unable to work daily. I had my pap at the end of summer and it was normal, but I reported itching and burning so they gave me medication for a yeast infection and a uti to treat while waiting for the results to come back. Fast forward to 2020, 17 doctors later, and countless misdiagnoses, she was finally diagnosed with lichen sclerosis and then stage 4 vulvar cancer in September 2020. I had itching, discomfort but no discharge or bleeding. It usually affects the surface of the skin of the vulva and is slow growing. She is such a caring Gyno is even got me a Appointment with Roswell Cancer Institute 2 days later I say shes my Angel she saved my Life! So far no recurrence no metastasis. My best wishes for you. I had a fantastic cancer team at M D Anderson in San Diego and UCSD Moores cancer center and am cancer free almost 1 year later. I will soon begin 4 weeks of daily radiation supported by weekly chemotherapy. I was diagnosed with Lichen Schlerosis three years ago and Squamous Cell Vulvar Cancer four months ago. Now I have pain in my anal area that has been explained away as everything from fungal to hemarrhoids. Though it can occur at any age, vulvar cancer is most commonly diagnosed in older adults. Hello! I am 66 yrs old. Mayo Clinic on Incontinence - Mayo Clinic Press, NEW The Essential Diabetes Book - Mayo Clinic Press, NEW Ending the Opioid Crisis - Mayo Clinic Press, FREE Mayo Clinic Diet Assessment - Mayo Clinic Press, Mayo Clinic Health Letter - FREE book - Mayo Clinic Press, Mayo Clinic Graduate School of Biomedical Sciences, Mayo Clinic School of Continuous Professional Development, Mayo Clinic School of Graduate Medical Education, Assortment Women's Health Products from Mayo Clinic Store, Book: Mayo Clinic Family Health Book, 5th Edition, Newsletter: Mayo Clinic Health Letter Digital Edition. Mayo Clinic is a not-for-profit organization. It's not clear what causes vaginal cancer. The mutations tell the cell to grow and divide rapidly. They can be found throughout the vulva, but most are in the area around the clitoris or on the labia . Elsevier; 2020. https://www.clinicalkey.com. In 2014 I had several cyst like bumps on my vulva. Research. A patch of skin that is differently textured or colored than the rest of the vulvar area. Now this place developed a lump. Ive been battling with a painful Vulva since Dec 2020. Treatment. These exams allow your doctor to visually examine your vulva and manually examine your internal reproductive organs to check for abnormalities. I have learned that I can still thankfully taste chocolate even when my taste-buds change from chemo. The rate for Vulvar Cancer was 6,070. Thanks for sharing your story Karen like you I was diagnosed at 49 yrs. A lump or mass in your vagina. My journey with vulvar cancer just started in September 2021 and is really reminiscent of Karens. I am 61 and had a complete hysterectomy at 48,I contracted genital warts from my 1st husband at age 20,I have smoked for 30 years and had a colposcopy at 38 due to an abnormal pap. http://www.cancer.gov/types/vaginal/patient/vaginal-treatment-pdq. 1998-2023 Mayo Foundation for Medical Education and Research (MFMER). Then I took her to another GYN, treatment again. Connect with others like you for support and answers to your questions in the Gynecologic Cancers support group on Mayo Clinic Connect, a patient community. I wanted to know aside from the symptoms online has anyone had any other symptoms with lack of hunger, weight lost, or only tasting salty and sweet foods? This question is quickly followed up with: Wait, what exactly is the vulva? Accessed Sept. 30, 2020. All rights reserved. The tumor was wrapped around the urethra and too close to the pelvic bone to have surgery. Squamous Cell Vulvar Cancer: Who out there have this cancer? The very next week, I was once again in the OR. Vulval cancer. I didnt look at it until today because it wasnt really painful until a few hours ago. The DNA contains the instructions that tell a cell what to do. I also had intense itching and pain when I urinated. Ive done more than 2 treatments to try and relieve my pain. Check out these best-sellers and special offers on books and newsletters from Mayo Clinic Press. Then again with my second child three years later. other information we have about you. Do this sound like what youve experienced with vulval cancer? Thank you for sharing your story. Persistent Itch. Therefore, its so important to pay attention to your vulva, as no one will know it better than you. Stay strong! Hi I am going on for a check up for a big black masss on vulva -feeling sad. The vulva includes the vagina and vaginal . Is that connected to the vulvar cancer? information is beneficial, we may combine your email and website usage information with together to ensure quality care and successful recovery. Unfortunately, the remaining area is DVIN so I expect there will be more surgeries in my future. Cancer of the vulva is a rare disease, accounting for 0.6 percent of all cancers in women, and it may form slowly over many years. the unsubscribe link in the e-mail. Cancer research is conducted in coordination with the Mayo Clinic Comprehensive Cancer Center. Vulvar ulcers might start out looking like bumps or a rash. I have never seen anything like it and cant really find photos online that look like it but I know that whatever it is, its serious Im devastated right now and terrified. Mayo Clinic has one of the largest and most experienced practices in the United States, I live alone. Other risk factors that have been linked to an increased risk of vaginal cancer include: Vaginal cancer may spread (metastasize) to distant areas of your body, such as your lungs, liver and bones. Centers for Disease Control and Prevention. Most vulvar melanomas are black or dark brown, but they can be white, pink, red, or other colors. Since vaginal cancer doesn't always cause signs and symptoms, follow your doctor's recommendations about when you should have routine pelvic exams. They took out 3 liters of fluid from her abdomen. Vulvar cancer makes up about 6% of cancers diagnosed in the female reproductive organs and less than 1% of all cancers in women. The gynaecologist advised early surgery of which is to be done today. Like Karen my body was thrown into perimedipause & then Medipause with break through bleeding and I was Itchy down there & kept buying Yeast Infection Medication every other month which I didnt need. Thank you so much for your post. I go tomorrow so lets keep our fingers Crossed. Hi Karen, sending prayers your way and thanks for the honesty that will bring help to others. Doesnt seem as though there is a lot of information, so any guidance would be greatly appreciated. After the second visit to the GYN, she referred us to a dermatologist and diagnosis was made. Also, yearly only 0.3% of individuals newly diagnosed with any cancer have Vulvar Cancer. Vaginal cancer. Hi! I am so scared of Hospitals & I waited I really thought it was my Bladder? The results came back negative. I am now 42. All appointments are prioritized on the basis of medical need. Id love to hear how the rest of you have managed the post treatment challenges. About the Author: Karen is a clinical psychologist who lives in Colorado. For vulvar cancer, your treatment may include some or all of the following: Surgery. Something as simple and annoying as a longstanding itch may not be discussed with a provider. I cant imagine what it could be but everything I look up points to cancer. My message to everyone is be diligent and listen to your bodies. This content does not have an English version. Stages and Outlook (Prognosis) After a cancer diagnosis, staging provides important information about the extent of cancer in the body and anticipated response to treatment. Vaginal cancer most commonly occurs in the cells that line the surface of your vagina, which is sometimes called the birth canal. Any use of this site constitutes your agreement to the Terms and Conditions and Privacy Policy linked below. For years Ive had a bump or two in my vulva, one in and one out. with campuses in Arizona, Florida and Minnesota. Call your doctor . Listen & pay attention to your Bodies if you think somethings Wrong and there telling you nothings Wrong go with your Gut get a 2nd Opinion & get a referral for a Cancer Doctor just to be Safe. Vulvar cancer is a rare cancer of a woman's vulva. Often, your insurer's customer service number is printed on the back of your insurance card. While I cannot offer any." + (show)- It came back again in 2014 after the birth of my daughter which later dissappeared on it own. Click here for an email preview. It's not clear what causes vulvar cancer. Vulvar cancer is a relatively rare type of cancer that affects the vulva, the external genital organs that protect a woman's reproductive system. "Mayo," "Mayo Clinic," "MayoClinic.org," "Mayo Clinic Healthy Living," and the triple-shield Mayo Clinic logo are trademarks of Mayo Foundation for Medical Education and Research. I am hopeful. Then before recovering from that surgery, I found another lesion, so that lead to the current treatment of chemo and radiation. So far, I have completed 3 rounds of chemotherapy and surgery (a subtotal radical vulvectomy). Vulvar cancer commonly forms as a lump or sore on the vulva that often causes itching. Vaginal biopsy, HIPEC, Vulvectomy, Abdominal hysterectomy, Minimally invasive abdominal surgery, Robotic myomectomy, Minimally invasive hysterectomy, Loop electrosurgical excision procedure, Hysteroscopy, Endometrial biopsy, Pelvic tumor surgery, Diagnostic laparoscopy, Laparoscopic surgery, Robotic surgery, Hysterectomy, Polypectomy, Gynecological surgery, Colostomy, Intrauterine device method, Trachelectomy, Vaginectomy, Laser ablation, Embolization therapy, Endometriosis surgery, Colposcopy, Salpingectomy, Ablation, Oophorectomy, Debulking surgery, Endometrial ablation, Lymph node sampling, Conization, BRCA gene mutation, Ovarian remnant syndrome, Gynecologic cancer, Lichen sclerosus, Leiomyosarcoma, Endometriosis, Vaginal dryness, Vulvitis, Cervical intraepithelial neoplasia grade 2, Adenocarcinoma, Vaginal cancer, Lynch syndrome, Uterine anomaly, Postmenopausal bleeding, Leiomyoma, Fallopian tube cancer, Adnexal tumors, Peritoneal cancer, Uterine polyps, Endometrial cancer, Cervical cancer, Genital warts, Vulvar dysplasia, Bartholin cyst, Adenomyosis, Vulvar cancer, Vaginal atrophy, Uterine fibroid, Cervical cysts, Cervical intraepithelial neoplasia grade 3, HPV infection, Hyperplasia, Ovarian cyst, Minimally invasive surgical staging, Robotic surgery, Vaginectomy, Vulvectomy, Abdominal hysterectomy, Minimally invasive hysterectomy, Vaginal hysterectomy, Diagnostic laparoscopy, Endometriosis surgery, Fertility sparing surgery, Pelvic exenteration, Minimally invasive surgery, Ovarian remnant removal, Robotic hysterectomy, Sentinel node biopsy, Endometriosis, Germ cell tumor, Adnexal tumors, Fallopian tube cancer, Cancer, Endometrial cancer, Ovarian cyst, Ovarian cancer, Cancer during pregnancy, Cervical cancer, Ectopic pregnancy, Cervical dysplasia, Ovarian remnant syndrome, Vulvar cancer, Peritoneal cancer, Uterine fibroid, Proton therapy, IMRT, Radiation therapy, External beam radiation therapy, Brachytherapy, Intraoperative radiation therapy, Vulvar cancer, Gynecologic cancer, Breast cancer, Vaginal cancer, Uterine sarcoma, Endometrial cancer, Cervical cancer, Ovarian cancer, Diagnostic laparoscopy, Vulvectomy, Minimally invasive hysterectomy, Diagnostic hysteroscopy, Conization, Cervical cerclage, Ovarian remnant removal, Vaginal hysterectomy, Hysteroscopy, Robotic surgery, Minimally invasive surgery, Minimally invasive surgical staging, Abdominal hysterectomy, Pelvic exenteration, Vaginectomy, Endometrial ablation, Robotic hysterectomy, Ablation, Sentinel node biopsy, Fertility sparing surgery, Vulvar dysplasia, Cervical cancer, Uterine polyps, Vaginal agenesis, Adnexal tumors, Vaginal cancer, Ectopic pregnancy, Cancer during pregnancy, Ovarian cyst, Cervical dysplasia, Sacrococcygeal teratoma, Mediastinal teratoma, Ovarian cancer, Fallopian tube cancer, Lower genital tract dysplasia, Peritoneal cancer, Vulvar cancer, Germ cell tumor, Ovarian remnant syndrome, Cancer, Vulvodynia, Uterine fibroid, Brachytherapy, External beam radiation therapy, IMRT, Intraoperative radiation therapy, Proton therapy, Vaginal cancer, Liver cancer, Anal cancer, Endometrial cancer, Metastatic colorectal cancer, Hilar cholangiocarcinoma, Cervical cancer, Ovarian cancer, Soft tissue sarcoma, Chondrosarcoma, Sarcoma, Rectal melanoma, Cholangiocarcinoma, Duodenal cancer, Esophageal cancer, Pancreatic cancer, Rhabdomyosarcoma, Ewing sarcoma, Bone cancer, Leiomyosarcoma, Vulvar cancer, Rectal cancer, Colon cancer, Stomach cancer, Small bowel cancer, Ampullary cancer, Gynecologic cancer, Peritoneal cancer, Cervical cancer, Vulvar cancer, Neuroendocrine tumor, Thyroid cancer, Ovarian cancer, Fallopian tube cancer, Uterine carcinoma, Adrenal cancer, Ablation, Minimally invasive surgery, Endometriosis surgery, Debulking surgery, Minimally invasive hysterectomy, Diagnostic hysteroscopy, Vaginal hysterectomy, Intraoperative radiation therapy, Hysterectomy, Pelvic exenteration, Minimally invasive surgical staging, Conization, Robotic hysterectomy, Gynecological surgery, Ovarian remnant removal, Hysteroscopy, Vaginectomy, Endometrial ablation, Robotic surgery, Sentinel node biopsy, Fertility sparing surgery, Diagnostic laparoscopy, Chemotherapy, Complex oncologic multidisciplinary pelvic surgery, Laparoscopic surgery, Cervical cerclage, Ovarian remnant syndrome, Peritoneal cancer, Vaginal cancer, Uterine polyps, Cancer, Vulvar dysplasia, Adnexal tumors, Sacrococcygeal teratoma, Recurrent cancer, Cancer during pregnancy, Germ cell tumor, Fallopian tube cancer, Endometriosis, Ovarian cyst, Ectopic pregnancy, Cervical cancer, Vulvodynia, Mediastinal lymph node enlargement, Vulvar cancer, Uterine fibroid, Ovarian cancer, Endometrial cancer, Cervical dysplasia, Vaginal agenesis, Lower genital tract dysplasia, Complex oncologic multidisciplinary pelvic surgery, Vaginectomy, Chemotherapy, Sentinel node biopsy, HIPEC, Conization, Minimally invasive hysterectomy, Abdominal hysterectomy, Minimally invasive surgery, Vulvectomy, Minimally invasive surgical staging, Robotic hysterectomy, Fertility sparing surgery, Pelvic exenteration, Gynecological surgery, Cervical dysplasia, Fallopian tube cancer, Vulvar cancer, Ovarian cancer, Cervical cancer, Germ cell tumor, Gynecologic cancer, Endometrial cancer, Vulvar dysplasia, Peritoneal cancer, Endometriosis, Adnexal tumors, Vaginal cancer, Gestational trophoblastic disease, Ovarian cyst. Skin changes in the vulva, including what looks like a rash or warts. There is no sure way to prevent vaginal cancer. 1998-2023 Mayo Foundation for Medical Education and Research (MFMER). In the ER, a CT scan revealed that what I had assumed was just a nasty case of food poisoning, was actually a lovely kidney stone. They are frightened, not sure what to ask, and are afraid of how they will feel after surgery. Itching. Accessed Oct. 2, 2020. And dont give up. For example, a few years ago I had a skin biopsy on a spot on my vulva that was itchy and mildly tender. In: Abeloff's Clinical Oncology. About half the cases are caused by human papillomavirus and half are caused by lichen sclerosus. This content does not have an Arabic version. Freaking out, as I have no real support system available and I have asked all my drs and nurses for help resources to no avail. I have been doing pelvic physical therapy and today my oncologist referred me for palliative care. The physician was treating her for a yeast infection. This site complies with the HONcode standard for trustworthy health information: verify here. Hi Im Gill aged 74 and having a simple vulvectomy on Friday 25 February 2022 at private hospital in Laval France. At 2 am on Labor Day 2019, I was laying on my bathroom floor writhing in agony. Mayo Clinic in Jacksonville, Florida, is ranked highly performing for cancer by U.S. News & World Report. Skin changes, such as color changes or thickening, A lump, wartlike bumps or an open sore (ulcer). Vulvar surgery and sentinel node mapping for vulvar cancer. If we combine this information with your protected Vulvar cancer symptoms. In: Williams Gynecology. My mom was diagnosed at the age of 90 with vulva cancer. Lesson learned.DO NOT self diagnose and self treat. The cancer of the vulva is a rare disease with a positive association to poor developing countries. The situation is difficult but your story is so great to learn that my grandma is not alone in this illness. She has a catheter in her bladder and the cancer is taking over the urethra and she is incontinent. They are filled with amazing women surviving gynecological cancers, offering tips and strategies for managing treatment side effects and providing unending support. You can do this using a mirror. several more years and more surgeries before V1N3 was diagnosed andin 2020 I had 38 daily sessions of radiotherapy, which eradicated the cancer. Vulvar cancer is a type of cancer that occurs on the outer surface area of the female genitalia. The area around my vulva actually looks like its deteriorating if that makes sense. Vaginal cancer. Vaginal cancer that spreads beyond the vagina is . She said it was likely genital warts caused by HPV. Im scared to death to talk about it and Im still scared and sad about my skin cancer. I hope u continue to do well. 1998-2023 Mayo Foundation for Medical Education and Research (MFMER). Talk to your doctor about your risk factors for vulvar cancer and other pelvic cancers in order to determine the most appropriate screening exam schedule for you. These decisions are made on a case-by-case basis. A single copy of these materials may be reprinted for noncommercial personal use only. a lump, sore, swelling or wart-like growth on the vulva. The vulva, quite often erroneously referred to as "vagina" or many other names, is the external part of the female genitalia. Vulvar melanoma starts on the skin of the vulva. Sign up for free, and stay up to date on research advancements, health tips and current health topics, like COVID-19, plus expertise on managing health. I am 35. She underwent 30 treatments of radiation. Changes in the color of the skin of the vulva, so that it looks redder or whiter than is normal for you. This November I had a part of my vulva and a 6.55 tumour taken out of my lymph nod. Niederhuber JE, et al. I have learned that talking about my lady bits with anyone and everyone has negated any (well most) feelings of embarrassment or discomfort with being the center of attention. I m 39 years old with 3 young kids. It is both helpful and uplifting considering what I have found thus far in trying to garner some insight. There is a problem with I couldnt do it so I called and she talked to all of them & answered all there questions becuz as soon as I tried to tell them all I could do is cry! I m carrying this lump for 3 yrs. American Cancer Society. I previously dealt with endometriosis and then cervical then most recently the vulva. I saw my gynecologist over 6 months ago for a large hard painful cyst like lump on my vulva, he said he could prescribe antibiotics, but would not do a biopsy. "Mayo," "Mayo Clinic," "MayoClinic.org," "Mayo Clinic Healthy Living," and the triple-shield Mayo Clinic logo are trademarks of Mayo Foundation for Medical Education and Research. And yet, once I was told I that I do indeed have cancer, in addition to fear I also felt determined and optimistic. This is easier to fix than some squamous diagnoses. Today I had a procedure dont to remove the fluid in cyst, it was filled with clotted blood. Whether you are newly diagnosed, seeking a second opinion, experiencing a recurrence, in need of a complex surgical procedure or simply seeking more information about vulvar cancer, Moffitt Cancer Center is here to help. Does that exist? My question, and one I can not find an answer to, is has anyone else had ongoing bleeding or oozing from the site five weeks later? To begin a vulvar self-exam, stand, squat, or sit over the top of a handheld mirror. This content does not have an Arabic version. No one can prepare you for this news. My beautiful mom, the kindest woman I have ever know died from vulvar cancer last week. Thank you for sharing my mother was diagnosed with vulvar cancer when she was 60. Ive undergone 2 surgeries and so far Im currently cancer free. Further, I entered perimenopause at the age of 45. Accessed Feb. 21, 2016. It concerns me because after my gynecologist spoke and showed dermatology my results they thought she was talking to them regarding my EYELID??!!! It is generally seen in women over the age of 50.; Pagets disease of the vulva causes itching, and it may appear red and flaky. I was the youngest patient my Oncologist had with this rare cancer. This is a symptom not only of vulvar cancer but of other genital and pelvic cancers. About 70% of cases of throat cancer are caused by it, too. https://www.nccn.org/professionals/physician_gls/default.aspx. She was diagnosed in Feb 2020. The most frequent diagnosis was breast cancer (268,600 women). While the exact cause of many vulvar cancers may not be known, several factors may increase risk of developing the disease.. General. I even have cried 3 times because every time I feel down there it doesnt feel like a sore thats going away. This includes the labia minora and labia majora (you might know these as your inner or outer lips), the clitoris, the pubic mound and the perineum, which is the skin between your vagina and anus. and the a wart like lump appeared that got bigger over time, I had it a while before I went to the doctors, they sent me for a biopsy and within days I had my diagnosis, I have been a long term sufferer of lichen sclerosis which is one of the main factors of why I ended up with this cancer, my oncologist said if I had been diagnosed with lichen sclerosis years before and been treated for it I may never have got vulva cancer, Ive found it extremely hard, not the physical side of thing but the anxiety side of it, I am ok now they managed to remove all of the cancer which Im so so grateful, I just get so scared of it coming back, all I can say is that no matter how small or insignificant if something isnt quite right go get checked by a doctor as soon as possible, they say vulva cancer is mostly diagnosed in older women, I was only 35 when I was diagnosed, it can happen to anyone xx. A small number of those with VAIN will eventually develop vaginal cancer, though doctors aren't sure what causes some cases to develop into cancer and others to remain benign. Vulvar cancer treatment usually involves surgery to remove the cancer and a small amount of surrounding healthy tissue. The pandemic situation does not allow to continue with the treatment. The symptoms have not gone away. Pelvic exam: An exam of the vagina, cervix, uterus, fallopian tubes, ovaries, and rectum. Cancer cells invade nearby tissues and can break off from an initial tumor to spread elsewhere in the body (metastasize). Im embarrassed scratching, despite Im alone; it still feels embarrassing. Vaginal cancer is divided into different types based on the type of cell where the cancer began. I really appreciate you raising awareness, my thoughts are with you and for all us women! Cancer of the vulva is a rare type of cancer that affects women. If you are a Mayo Clinic patient, this could However more recently, I have a bump on the left side of my vaginal opening that I (again stupidly) assumed was a pimple and squeezed it to pop. If you have any further questions, feel free tocontact usfor more information. information highlighted below and resubmit the form. Vulvar cancer . I had a lump on my labia minora in 2013 after the birth of my Son, it was diagnosed as bartholin cyst. It's also a symptom of many other conditions that aren't quite as serious as cancer, but it's still a serious symptom. Large R side tumor near clitoris. Ive just been to the doctor waiting a 2 week referral white patches on my vulvar no sore or redness yet.
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